Advocacy_GraphicThe Chapter is encouraging members to  disclose when they are having difficulty with their care. This can include treatment in the care of the Manitoba Bleeding Disorders Program (MBDP),an Emergency department or any other care facility related to the management of their inherited bleeding disorder. The MBDP has been very open to collaborating with the Chapter as they need to hear about any issues that members are having, so that they can work to resolve them.

At the Annual General Meeting, the Chapter invited Barbara Bunko, from the Patient Relations Office, to talk to members about  the function of their office and how and when to submit a letter of complaint. To date the Chapter office has helped 3 members submit  their letters and are currently working on 2 more. If you want to send a letter to the Patient Relations Office on your own, you can reach them at pro@exchange.hsc.mb.ca.

Not every members is comfortable writing a letter. This was discussed in a meeting with MBDP Medical Director, Dr. Jayson Stoffman. Dr. Stoffman suggested that the Chapter keep an anonymous log of members who email, call or drop in, to talk about a problem they are having. The Chapter will be submitting the log and meeting with the MBDP management on a quarterly basis to discuss problems that members are experiencing.

If you are experiencing a problem, you are likely not alone. Please take this opportunity to voice your concerns. It is only through collaboration with the MBDP and the advocacy efforts of our community, that we can maintain the standards of care.