Living with and Managing Hemophilia from Diagnosis and

through Key Care Transitions: The Journey for Families of

Children with Hemophilia

WHAT IS THIS STUDY ABOUT?

To learn from youth and their families about young people’s

experiences living with hemophilia and other bleeding

disorders.

WHO CAN PARTICIPATE?

Youth (5-18 years old) and their parents or guardians.

WHAT CAN YOU EXPECT?

Participate in interview sessions. You will also photograph

meaningful people, places and things.

Families will receive a $50 gift certificate. Participants

will also receive a basic digital camera.

Principal Researcher:

Dr. Roberta Woodgate, Faculty of Nursing, University of Manitoba

To participate or to find out more information about the study, please contact Elliana at:

Phone: 204-474-9476

Email: Elliana.Gilbert@umanitoba.ca