As a low-prevalence disease, there is limited understanding of the impact of haemophilia on the lives of patients and their families and to what extent different types of treatment can manage this condition and improve their life quality.

This online research focuses on treatment options and life quality in an attempt to reveal any interaction between these two factors. Other topics such as impact on family life and treatment compliance will also be explored in this study.

For the success of this research, we require:

 

30 Haemophilia Type A patients

10 Haemophilia Type B patients

10 Parents of Haemophilia Type A / Type B patients

This is a 30 minute survey and you will be able to resume from where you left in case you decide to take a break. Please click on the survey link below to participate in this research.

http://www.hemophilia.ca/en/research/opportunities-to-participate-in-marketing-research-studies/

As a thanks for your participation, we will donate CAD$ 1,000 to Canadian Haemophilia Society.

 Please note that all survey responses are confidential and used in aggregated form. Your personal information will never be released to a third party.

Opinion Health perform all their market research in accordance with the ABPI, MRS and BHBIA codes of conduct regarding anonymity, confidentiality, and the ethical practice of market research – the aim of this market research is to gain your views and is not in any way promotional. We are also fully compliant with the Data Protection Act. Any information you disclose will be treated in the strictest confidence and the results are pooled so no answers are attributable to any individuals. You have the right to withdraw from the survey at any time during the interview process and to withhold information as you see fit. The company commissioning this research does not hold or see any information regarding respondents and your identity will always remain anonymous.

Questions or Concerns?

If you have any queries regarding this study then please feel free to call us on +44 (0) 207 486 6700 or send an email to info@opinionhealth.com.

If you find that participating in this survey raises questions for you about your or your child’s treatment or health, please contact your Haemophilia Centre.