Research Image 2We are looking for members who would be willing to participate in this study. PROBE  includes data from 18 countries that are participating in Phase I. Phase I is administered via a paper survey. If you are willing to do the survey, you can download it PROBE Survey ENG (Canada)  scan it and email it to us or to ensure your privacy, mail it back to us. We’d be happy to mail the survey to you with a return stamped envelope. Get in touch with the office at or call us at 204.775.8625.

The survey can be filled out by members with hemophilia A and B or no inherited bleeding disorder. Having it filled out by people not affected by hemophilia will give researchers a comparator group.

PROBE is the first international health survey designed by patients, administered by patient organizations and whose research outcomes will be published by patient investigators.